The journey continues. I feel like I am a trailblazer for my friends. I know thousands and thousands of men and woman have gone before me in this challenge. Many in much worse cases than mine. Yet, I feel like the experience I am gaining is important to share with my friends and family so that if one day they have to take on this task they will not be feel as blind-sided as I do.
Yet, I know that no matter how much you think you have it figured out there are twist and turns as you go. Sometimes it could be a lack of communication between patient/doctor. It could be that something new was discovered after a test. I have learned that I have to trust that they know what they are doing. Be a good patient.
With this said I have had another twist. I was told by the original surgeon that during the mastectomy she will do a Sentinel Lymph Node Mapping. It will involve blue dye and some type of radiation. The oncologist confirmed the procedure and said that after my surgery we will know if there is chemo needed afterwards.
My surgeon is ill and out of the office indefinitely. I have been transferred to someone she works with and trusts. I met with the new surgeon yesterday. She sprang on me that she likes to do the mapping a week before surgery! Um, that is almost too late at this point. So yesterday I waited for 2 hours for them to schedule a surgery for tomorrow. And they also are squeezing in an EKG too.
This is the mapping schedule:
No food OR water after midnight tonight. (makes me feel like a gremlin) Apply EMLA (lidocaine cream) at 10 AM. Check into hospital at 11 AM. Get EKG. Go to Radiology department at 1 PM. Surgery at 4:15 PM. So if you are reading this, re-read this part. NO FOOD OR WATER for a whole day!! I will be shaky and hungry and thirsty, really thirsty, I drink a lot of water each day and no coffee! The reason for the early check in is it takes hours for the blue dye to get to the sentinel node. Meanwhile it will turn my nipple and urine blue! Hello Smurfette!
My husband is upset because he will miss another day of work that he wasn’t anticipating. I have a follow up appointment to go over the pathology results on the 12th. Means another copay, more missed work, another day of not being normal.
And don’t even get me started on the cost of cancer…. Maybe that will be my next post.
I should have focused more on the Gremlins, it would have made this a funnier blog. Just need to get the thoughts out. I will end with this:
Blue Nipple, Blue Pee, not a Gizmo, just an angry hungry Gremlin.